Location

SAINT LOUIS, MO 63110

Scheduled Hours

40

Position Summary

This nurse coordinator's role will be to coordinate care for patients with rare neurologic, genetic, and neurodevelopmental disorders, including, but not limited to, Angelman Syndrome, Tuberous Sclerosis Complex (TSC), Leukodystrophies, and related conditions. The nurse coordinator serves as the primary family contact, participates in multidisciplinary clinics, and coordinates care across specialties.

Job Description

• Care Coordination and Patient Navigation
  • Serves as the primary point of contact for patients and families with rare neurologic, genetic, and neurodevelopmental disorders, fostering continuity of care and long-term relationships.
  • Coordinates multidisciplinary care plans, specialty referrals, diagnostic testing, and follow-up across internal and external providers.
  • Participates in multidisciplinary care conferences, communicates diagnostic results and treatment recommendations, and assists families in navigating healthcare, educational, and community resources.
  • Supports care transitions across inpatient, outpatient, and adult care settings and facilitates access to disease-specific programs, registries, and support services.

• Multidisciplinary Clinic Coordination and Program Support
  • Participates in rare disease specialty clinics and multidisciplinary visits, coordinating pre-visit planning, clinic flow, and follow-up activities.
  • Provides patient and family education regarding diagnoses, treatment plans, surveillance recommendations, and available resources.
  • Completes after-visit summaries and ensures timely implementation of care plan recommendations.
  • Supports development and optimization of rare disease clinic operations and program growth initiatives.

• Clinical Support, Triage, and Family Education
  • Triages patient calls, electronic messages, and clinical concerns, collaborating with providers to determine appropriate interventions and follow-up.
  • Provides education regarding medications, treatments, procedures, genetic testing results, symptom management, and disease-specific care recommendations.
  • Coordinates specialty medications, prior authorizations, and ongoing treatment monitoring.
  • Serves as a clinical resource for patients, families, schools, home health agencies, and community providers.

• Quality improvement and Program Development
  • Participates in quality improvement initiatives, patient registries, and outcome-tracking activities to enhance care delivery and patient experience.
  • Maintains compliance with institutional policies, regulatory requirements, environmental safety standards, and infection prevention practices.
  • Assists with development of patient education materials, care coordination resources, and program workflows.
  • Maintains current knowledge of rare disease treatments, clinical guidelines, and best practices.

• Reviews EPIC treatment plans for new order sets and clinical trials.
• Serves as Epic Trainer.
• Performs other duties as assigned.

Working Conditions:
Job Location/Working Conditions

• Normal office environment
• Requires extensive safety training
• Exposure to blood-borne pathogens
• Alternative work schedules
• Exposure to chemicals
• Requires protective devices
• Patient care setting
• Direct patient care setting
• Satellite locations
• Ability to travel to various on- and off-campus locations

Physical Effort

• Typically sitting at desk or table
• Typically standing or walking
• Typically bending, crouching, stooping
• Occasional lifting (25 lbs or less)

Equipment

• Office equipment
• Clinical/diagnostic equipment

The above statements are intended to describe the general nature and level of work performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of all job duties performed by the personnel so classified. Management reserves the right to revise or amend duties at any time.

Required Qualifications

Education:

Associate Degree In Nursing Or Diploma In Registered Nursing

Certifications/Professional Licenses:

The list below may include all acceptable certifications, professional licenses and issuers. More than one credential, certification or professional license may be required depending on the role.

Basic Life Support - American Heart Association, Basic Life Support - American Red Cross, Registered Nurse - Illinois Department of Financial and Professional Regulation, Registered Nurse - Missouri Division of Professional Registration

Work Experience:

Clinical Nurse Coordinator (3 Years)

Skills:

Not Applicable

Driver's License:

A driver's license is not required for this position.

More About This Job

Required Qualifications:

• Graduate of an accredited nursing program with three years of clinical nurse coordinator experience.
• Current RN licensure in the state of Missouri and/or Illinois, depending on location, in accordance with the Compact Act.
• Basic Life Support certification (Online BLS certifications, those without a skills assessment component, are not sufficient to meet the BLS requirements).

Preferred Qualifications

Education:

No additional education unless stated elsewhere in the job posting.

Certifications/Professional Licenses:

No additional certification/professional licenses unless stated elsewhere in the job posting.

Work Experience:

No additional work experience unless stated elsewhere in the job posting.

Skills:

Clinical Knowledge, Clinical Research Coordination, Database Management, Effective Written Communication, Electronic Medical Records (EMR), Emergency Situations, Epic EHR, Family Support, General Nursing, Infection Control Nursing, Interpersonal Communication, Onboarding, Oral Communications, Patient Care Plans, Patient Education, Research Development, Research Methodologies, Safety Practices, Spreadsheets, Statistical Analysis Software (SAS), Team Leadership, Work Collaboratively

Grade

S27

Salary Range

$68,700.00 - $123,600.00 / Annually

The salary range reflects base salaries paid for positions in a given job grade across the University. Individual rates within the range will be determined by factors including one's qualifications and performance, equity with others in the department, market rates for positions within the same grade and department budget.

Questions

For frequently asked questions about the application process, please refer to our External Applicant FAQ.

Accommodation

If you are unable to use our online application system and would like an accommodation, please email CandidateQuestions@wustl.edu or call the dedicated accommodation inquiry number at 314-935-1149 and leave a voicemail with the nature of your request.

All qualified individuals must be able to perform the essential functions of the position satisfactorily and, if requested, reasonable accommodations will be made to enable employees with disabilities to perform the essential functions of their job, absent undue hardship.

Pre-Employment Screening

All external candidates receiving an offer for employment will be required to submit to pre-employment screening for this position. The screenings will include criminal background check and, as applicable for the position, other background checks, drug screen, an employment and education or licensure/certification verification, physical examination, certain vaccinations and/or governmental registry checks. All offers are contingent upon successful completion of required screening.

Benefits Statement

Personal

• Up to 22 days of vacation, 10 recognized holidays, and sick time.

• Competitive health insurance packages with priority appointments and lower copays/coinsurance.

• Take advantage of our free Metro transit U-Pass for eligible employees.

• WashU provides eligible employees with a defined contribution (403(b)) Retirement Savings Plan, which combines employee contributions and university contributions starting at 7%.

Wellness

• Wellness challenges, annual health screenings, mental health resources, mindfulness programs and courses, employee assistance program (EAP), financial resources, access to dietitians, and more!

Family

• We offer 4 weeks of caregiver leave to bond with your new child. Family care resources are also available for your continued childcare needs. Need adult care? We’ve got you covered.

• WashU covers the cost of tuition for you and your family, including dependent undergraduate-level college tuition up to 100% at WashU and 40% elsewhere after seven years with us.

For policies, detailed benefits, and eligibility, please visit: https://hr.wustl.edu/benefits/

EEO Statement

Washington University in St. Louis is committed to the principles and practices of equal employment opportunity. It is the University’s policy to provide equal opportunity and access to persons in all job titles without regard to race, ethnicity or shared ancestry, color, national origin, citizenship (where prohibited by federal law), age, religion, sex, sexual orientation, gender identity or expression, disability, protected veteran status, or genetic information. As a federal contractor, the university maintains affirmative action programs to implement its equal employment opportunity policy for individuals with disabilities and protected veterans, in accordance with Section 503 of the Rehabilitation Act of 1973, as amended, and the Vietnam Era Veterans’ Readjustment Assistance Act of 1974 (VEVRAA), as amended.