U.S. Patient Strategy & Execution

• Develop and execute the end-to-end omni-channel strategy identifying business critical tactics to ensure post launch excellence
• Translate strategy into high-quality, compliant patient-facing tactics, owning the execution of all non-personal promotion, inclusive of unbranded and branded websites, media, social media, and CRM
• Optimize digital performance through analytics and audience insights, and maximize ROI across paid, owned and earned digital channels.
• Lead the strategy and execution of new digital platforms, which may include, but is not limited to YouTube, Reddit, Apps, or innovative digital partnerships
• Ensure consistency and excellence across all patient touchpoints while maintaining a strong, authentic patient-centric lens.

Patient Engagement & Community Leadership

• Build and maintain strong, trusted relationships within the SMA patient and caregiver community.
• Partner with Patient Advocacy and the Patient Relationship agency to ensure patient feedback is incorporated and the patient voice is represented and accurately reflected in patient materials
• Champion innovation in patient engagement, continuously evolving approaches to improve the patient experience across the journey.

Cross-Functional Leadership

• Serve as a core member of the U.S. Marketing Team, partnering closely with Patient Services, Medical Affairs, Advocacy, Market Access, Regulatory, Legal, and Compliance.
• Ensure strong alignment between patient marketing initiatives and patient support programs, including development of branded patient materials.
• Clearly communicate and champion patient brand strategy with internal stakeholders and external partners.

Agency, Budget & Operational Excellence

• Partner with agency-of-record and media agency to deliver high impact patient marketing initiatives, driving strategic value, innovation, and executional excellence.
• Lead the development of patient-facing assets, event kits, and materials to support consistent execution across the field.
• Ability to prioritize post launch critical tactics and optimization of the budget, demonstrating strong fiscal discipline and accountability.
• Support post launch readiness, participate in promotional review processes, and ongoing optimization of patient tactics.

• Bachelor’s degree required; advanced degree preferred.
• 6+ years of experience in pharmaceutical or biotechnology marketing, with significant experience in U.S. patient/consumer marketing.
• 6+ years of experience leading the development and execution of integrated digital marketing strategies creating compliant, data-driven campaigns that increased patient engagement
• Demonstrated success leading patient marketing strategy and execution in specialty or rare disease environments.
• Experience in neurology, neuromuscular disease, or rare disease strongly preferred.
• Deep commitment to patient centricity with the ability to translate insight into impactful, compliant engagement.
• Strong understanding of regulatory, legal, and compliance requirements for patient-facing communications.
• Proven ability to lead agencies, manage budgets, and operate effectively in a matrixed organization.
• Excellent communication, influence, and stakeholder-management skills.
• Entrepreneurial mindset with comfort operating in a first-launch, high-growth environment.
• Willingness to travel as needed (anticipated up to ~30%).